As I’ve mentioned in other posts, I’m fortunate in being exposed to Usher Syndrome before being diagnosed. My best friend all through school (we met in the 3rd and 4th grade) has Ushers and was diagnosed at birth. She does not drive at night, but is otherwise unlimited.
Well, Morgan came and stayed at my house for a weekend before moving to Seattle. She hasn’t met Eleanor or Bryan and was excited to catch up with everything that was in my life. The last time we saw each other was about a year after my family and I moved to Missouri shortly after starting high school. We had fun gossiping about former schoolmates and discussing how our lives have developed.
It was reassuring to meet what some would consider a ‘good case’ of Ushers. The only times I remembered her medical diagnosis was when we were making chicken noodle soup and neither of us could sign next to each other without stopping to turn towards the other person. She also has that tunnel vision when it comes to being on the computer. I think I’m getting better about it since I’m looking more around the laptop than AT the laptop (so I’ll at least know Bryan is sitting next to me rather than before when I spent all my energy staring at the screen, becoming oblivious to anyone else in the room). With Morgan though, her case has gotten to the point where you have to tap the screen to get her attention.
After she left I asked Bryan if he enjoyed the company. He said yes, but found it frustrating he couldn’t eavesdrop on our conversation.
Maybe after all of the chaos in our lives right now settles down Bryan and I can sit down and work on teaching him sign language. One can always hope, right?